From: Young carers: growing up with chronic illness in the family - a systematic review 2007-2017
N | References | Aim | Sample | Setting, data collection and analysis |
---|---|---|---|---|
1. | Moore and McArthur (2007) Australia | To identify the current needs and barriers to services for young carers and their families | Convenience sampling: Young carers n = 50 (F n = 24; M n = 26) Age: 9–24 Care recipient: parents | Setting: NR Semi-structured, face-to-face interviews: Participatory approach with peer researchers Content analysis |
2. | Earley et al. (2007) UK | To explore young carer’s appraisals of the impacts of caregiving and the ways they cope with these demands | Convenience sampling: Young carers n = 17 (F n = 3;M n = 14) Age: 10–16 Care recipient: siblings n = 8, parents n = 8, grandparent n = 1 | Setting: two locations of supporting projects for young carers 2 focus group interviews with 9 und 8 adolescents; 3 semi-structured interviews with female participants; Thematic analysis |
3. | Bolas et al. (2007) UK | To explore the personal experiences of young carers in relation to their well-being | Convenience sampling: Young carers n = 5 (F n = 3; M n = 2) Age: 14–18 Care recipient: sibling, parent, stepfather | Setting: at home or at the young carer’s centre Semi-structured interviews Interpretative phenomenological analysis |
4. 5. | Metzing (2007) Metzing and Schnepp (2008) Germany | To gain insight into the situation of young carers and their families in order to provide a basis for the concept of family oriented support | Theoretical Sampling: Families n = 34, Young carers n = 41 (F n = 25; M n = 16) parents n = 41 Care recipient: parents, siblings, grandparents | Setting: the interview appointments and locations were chosen by the families – mostly at home Semi-structured interviews Grounded Theory |
6. | Kain (2009) USA | To identify and describe the basic social psychological problem shared by young adolescent girls | Theoretical Sampling: Young carers n = 9 (F n = 9) Age: 11–14 Care recipient: grandparents, parents, others | Setting: the interview appointments and locations were chosen by the families – at home Semi-structured interviews Grounded Theory |
7. | Moore and McArthur (2009) Australia | To gather young carers’ views about school, the challenges they face in engaging with education and their peers | Convenience sampling: Young carers n = 51 (F n = 29; M n = 22) Age: 12–21 Care recipient: family members | Setting: interviews by phone and a group interview 51 interviews: semi-structured interviews n = 44 and a group interview with 7 young carers Data analysis: NR |
8. | McDonald et al. (2009) New Zealand | To explore experiences of both young carers and those they support | Convenience sample: Young carers n = 14 (F n = 12; M n = 2) Age: 11–26 Care recipient: parents, siblings, grandparents | Setting: NR Semi-structured interviews (if possible: together with the supported ill family member) Grounded Theory |
9. | Richardson et al. (2009) UK | Qualitative evaluation of a young carers’ initiative | Convenience sampling: Young carers n = 24 (F n = 12; M n = 12) Age: 11–16 Care recipient: siblings, parents, | Setting: the location of supporting project for young carers 3 focus group discussions Thematic content analysis |
10. | Svanberg et al. (2010) UK | To discover the experiences of the children of younger people with dementia. | Convenience sampling: Young carers n = 12 (F n = 6; M n = 6) Age: 11–18 Care recipient: parents (F n = 2; M n = 7) | Setting: the interview locations were chosen by the young carers– at home Semi-structured interviews Grounded Theory - Constant comparative methods and analysis carried out cyclically |
11. | Nichols et al. (2013) Canada | To learn more about the needs and experiences of young carers of parents with frontotemporal dementia | Convenience sample: Young carers n = 14 (F n = 10; M n = 4) Age: 11–18 Care recipient: parents | Setting: interviews via telephone und Skype Semi-structured focus group interviews Descriptive thematic analysis |
12. | Doutre et al. (2013) UK | To explore the experiences of young carers from a strengths-based perspective | Convenience sample: children, who were accompanied more than two years in a Young carers support project n = 6 (F n = 3; M n = 3) Age: 11–13 Care recipient: parents | Setting: at school 3 semi-structured interviews and photo elicitation techniques Interpretative, phenomenological analysis |
13. | Ortner (2014) Austria | To understand the life of children, who grow up with a mental ill parent | Convenience sample: Young carers n = 9 (F n = 6; M n = 3) Age: 13–24 Care recipient: parents | Setting: NR 9 qualitative interviews Grounded Theory |
14. 15. | Großmann (2015) Germany Mauseth & Hjälmhult (2016) Norway | To identify the needs and relevance for supporting young carers | Convenience sampling: Experts n = 3, Young carers n = 11 (F n = 6; M n = 5) Age: 7–13 Care recipients: parents Theoretical Sampling: Adolescents n = 15, (F n = 8; M n = 7) Care recipient: parents with multiple sclerosis disease | Setting: the location of supporting project for young carers in Germany (YCD) 3 expert interviews, 11 problem-centred, semi-structured interviews 5 focus group interviews content analysis Setting: The interviews took place in a quiet setting without disruptions, in the family home or a convenient office nearby. Semi-structured interviews Grounded Theory |