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Table 1 Characteristics of qualitative studies.

From: Young carers: growing up with chronic illness in the family - a systematic review 2007-2017

N References Aim Sample Setting, data collection and analysis
1. Moore and McArthur (2007)
Australia
To identify the current needs and barriers to services for young carers and their families Convenience sampling: Young carers n = 50 (F n = 24; M n = 26)
Age: 9–24
Care recipient: parents
Setting: NR
Semi-structured, face-to-face interviews: Participatory approach with peer researchers
Content analysis
2. Earley et al. (2007)
UK
To explore young carer’s appraisals of the impacts of caregiving and the ways they cope with these demands Convenience sampling: Young carers n = 17 (F n = 3;M n = 14)
Age: 10–16
Care recipient: siblings n = 8, parents n = 8, grandparent n = 1
Setting: two locations of supporting projects for young carers
2 focus group interviews with 9 und 8 adolescents; 3 semi-structured interviews with female participants;
Thematic analysis
3. Bolas et al. (2007)
UK
To explore the personal experiences of young carers in relation to their well-being Convenience sampling: Young carers n = 5 (F n = 3; M n = 2)
Age: 14–18
Care recipient: sibling, parent, stepfather
Setting: at home or at the young carer’s centre
Semi-structured interviews
Interpretative phenomenological analysis
4.
5.
Metzing (2007)
Metzing and Schnepp (2008)
Germany
To gain insight into the situation of young carers and their families in order to provide a basis for the concept of family oriented support Theoretical Sampling: Families n = 34, Young carers n = 41 (F n = 25; M n = 16)
parents n = 41
Care recipient: parents, siblings, grandparents
Setting: the interview appointments and locations were chosen by the families – mostly at home
Semi-structured interviews
Grounded Theory
6. Kain (2009)
USA
To identify and describe the basic social psychological problem shared by young adolescent girls Theoretical Sampling:
Young carers n = 9 (F n = 9)
Age: 11–14
Care recipient: grandparents, parents, others
Setting: the interview appointments and locations were chosen by the families – at home Semi-structured interviews
Grounded Theory
7. Moore and McArthur
(2009)
Australia
To gather young carers’ views about school, the challenges they face in engaging with education and their peers Convenience sampling:
Young carers n = 51 (F n = 29; M n = 22)
Age: 12–21
Care recipient: family members
Setting: interviews by phone and a group interview 51 interviews: semi-structured interviews n = 44 and a group interview with 7 young carers
Data analysis: NR
8. McDonald et al. (2009)
New Zealand
To explore experiences of both young carers and those they support Convenience sample:
Young carers n = 14 (F n = 12; M n = 2)
Age: 11–26
Care recipient: parents, siblings, grandparents
Setting: NR
Semi-structured interviews (if possible: together with the supported ill family member)
Grounded Theory
9. Richardson et al. (2009)
UK
Qualitative evaluation of a young carers’ initiative Convenience sampling:
Young carers n = 24 (F n = 12; M n = 12)
Age: 11–16
Care recipient: siblings, parents,
Setting: the location of supporting project for young carers
3 focus group discussions
Thematic content analysis
10. Svanberg et al. (2010)
UK
To discover the experiences of the children of younger people with dementia. Convenience sampling:
Young carers n = 12 (F n = 6; M n = 6)
Age: 11–18
Care recipient: parents (F n = 2; M n = 7)
Setting: the interview locations were chosen by the young carers– at home
Semi-structured interviews
Grounded Theory - Constant comparative methods and analysis carried out cyclically
11. Nichols et al. (2013)
Canada
To learn more about the needs and experiences of young carers of parents with frontotemporal dementia Convenience sample:
Young carers n = 14 (F n = 10; M n = 4)
Age: 11–18
Care recipient: parents
Setting: interviews via telephone und Skype
Semi-structured focus group interviews
Descriptive thematic analysis
12. Doutre et al. (2013)
UK
To explore the experiences of young carers from a strengths-based perspective Convenience sample:
children, who were accompanied more than two years in a Young carers support project n = 6 (F n = 3; M n = 3)
Age: 11–13
Care recipient: parents
Setting: at school
3 semi-structured interviews and photo elicitation techniques
Interpretative, phenomenological analysis
13. Ortner (2014)
Austria
To understand the life of children, who grow up with a mental ill parent Convenience sample:
Young carers n = 9 (F n = 6; M n = 3)
Age: 13–24
Care recipient: parents
Setting: NR
9 qualitative interviews
Grounded Theory
14.
15.
Großmann (2015)
Germany
Mauseth & Hjälmhult (2016)
Norway
To identify the needs and relevance for supporting young carers Convenience sampling:
Experts n = 3,
Young carers n = 11 (F n = 6; M n = 5)
Age: 7–13
Care recipients: parents
Theoretical Sampling:
Adolescents n = 15, (F n = 8; M n = 7)
Care recipient: parents with multiple sclerosis disease
Setting: the location of supporting project for young carers in Germany (YCD)
3 expert interviews, 11 problem-centred, semi-structured interviews
5 focus group interviews
content analysis
Setting: The interviews took place in a quiet setting without disruptions, in the family home or a convenient office nearby.
Semi-structured interviews
Grounded Theory